I am just not confirming ANY comments on my blog

Just for anybody’s who wants to comment on my blog : I am not confirming ANY comments on it I had too much spam messages and I don’t have time to see all comments which is good or spam … so I delate every day ALL COMMENTS send me

Sorry for your inconvenience but it’s like this

L’Institut national d’excellence en santé et en services sociaux (INESSS) s’est vu confier le mandat d’évaluer la valeur thérapeutique de l’oxygénothérapie hyperbare dans la prise en charge de la paralysie cérébrale.

Svpl toutes mes contacts qui utilisent Hyperbare et qui parle français répondre cet questionnaire ( en espérant que ça va donner ses résultats pour promouvoir loi sur Hyperbare à Canada !)

PARTICIPANTS RECHERCHÉS

C’est le temps de faire valoir notre expérience, n’hésitez pas à participer et à partager 🙂

L’Institut national d’excellence en santé et en services sociaux (INESSS) s’est vu confier le mandat d’évaluer la valeur thérapeutique de l’oxygénothérapie hyperbare dans la prise en charge de la paralysie cérébrale.

Pour ce projet, l’INESSS est à la recherche de parents et de proches aidants d’enfants atteints de la paralysie cérébrale et de jeunes adultes avec la paralysie cérébrale de 18 à 25 ans afin de mieux comprendre l’expérience de soins, leurs besoins non comblés et leur perspective face à l’oxygénothérapie hyperbare.

https://fr.surveymonkey.com/r/Appel_OHB?fbclid=IwAR1NSh_IHT1x4H1lbECr0noohwUMC9Odl2xMm-EvBe9jbYy9kRuIpinL1AQ

Neurons

Cells die in two ways- apoptosis or necrosis.

Apoptosis is programmed cell death and, as the description says, it dies over a period of time and the cell is partially recycled. This tends to be planned and a result of unused or misplaced cells.

Necrosis is quicker, uglier and releases toxins which are not ideal for the brain. This happens more often with trauma.

There is also a large gray area in the middle where cells can die with properties of apoptosis and necrosis. Using microscopes it can be very difficult to tell which is happening.

However, in cases of blunt trauma, if certain cells (e.g.: neurons) die then the dead cells may be engulfed and/or replaced by other cells in the brain such as [micro]glia or astrocytes.

Good read: ( about neurones)

https://www.ninds.nih.gov/Disorders/Patient-Caregiver-Education/Life-and-Death-Neuron

Sign petition for Hbot recognition for brain injury please

M’y son was really helped by hbot after his anoxic injury because his cardiac arrest caused by his Wpw

( if you wish to read his story) on my blog :

http://brain-injury-hope.com/our-medical-experience/

But I am asking you to help us parents to get more support for fda for hbot:

Christian G. Huber friend of mine

did this petition

If you wish to sign and to share 😉 go just on this link:

https://chn.ge/2ONiSod

Sign that Food and Drug Administration: Approve Hyperbaric Oxygen for Off-Label Conditions (Cerebral Palsy, TBI, PTSD, etc.) »

https://chn.ge/2ONiSod

Merci!

Svetlana

Mollii and what I think about the Intensive Suit Therapy programs:

Honestly I don’t personally liked TheraSuit we tried long time ago in Spain for Marc ( he hated that it was tearing him all diferent ways and didn’t supported it more than 3 minutes ) ….may be I didn’t tried too long enough but it was all as our experience with suits for naw….

New very small study for Mollii: (2019)

https://mollii.com/press-release-2019-05-07-new-study-on-mollii-in-children-with-cerebral-palsy/

I was asked a lot about Mollii ( I know french mother Mélanie Masson Jeannot – all her contacts at the end of this article

Who created the association near Paris)

https://www.facebook.com/1588984894653180/posts/2283404491877880?sfns=mo

They did french study in her conductive education centre for Mollii:

http://apetitpas.over-blog.fr/2016/12/neuromuscular-electrical-stimulation-and-conductive-education-mira-auer-conductor.html

I never tried yet for my son Marc because he has electrical suplimental pathways in his heart (wpw syndrome) I wasn’t convinced that it was safe to try it … next September 2018 I will go in Italy to check his WPW and if it’s ok after 5th operation and we get Professor Pappone agrément so may be I will try it….this winter

So I can give just informations about I can’t testimonials about haw it works ok;)?

So informations from this site:https://www.myelin.org/2017/08/mollii-suit-assistive-device-for-muscle-stiffness-spasticity-motor-disability/

« The Mollii Suit is a new assistive device developed by Inerventions, a Swedish company, that can “relax spastic, tense, and aching muscles.”  The company was started by Mollii inventor Fredrik Lundqvist in 2009. According to their website, Mollii is currently being used by people with cerebral palsy, stroke, spinal cord injury, acquired brain damage, and neurodegenerative conditions. Inerventions mission is, “creating opportunities for active movement and functional improvements, and providing everybody with the chance to live a dignified and active life.

How does it work?

The suit has 58 electrodes which can be combined in various ways. Mollii has a control unit which is individually programmed for each user. The person prescribing Mollii uses a computer program to adapt the active electrodes and the intensity (which muscles are to be activated by means of current). The settings are then saved in the Mollii control unit, making it simple for the device to be used at home.

Mollii uses low level electric current to produce basic tension in the musculature. The current stimulates the antagonist to the spastic muscle. If, for example, the biceps is spastic, the triceps is stimulated which in turn makes the biceps relax. Relaxing the muscle enables active movement and a gradual improvement in function. The physiological mechanism is called reciprocal inhibition. »

https://inerventions.se/en/product/?readmore=mollii

Before/after pictures:

More pictures hire :

https://cdn.fbsbx.com/v/t59.2708-21/18537791_780753905424775_705914180456153088_n.pdf/Before-After-Pics.pdf?_nc_cat=0&oh=661b77ecf4aa26e4b0dc767d3b869a5f&oe=5B7AC1C4&dl=1

Case of study:

https://www.hobbsrehabilitation.co.uk/docs/LB_Mollii_MS_Trust_Poster_Sep2016_2.pdf

Tests:

https://inerventions.se/en/new-tests/

https://cdn.fbsbx.com/v/t59.2708-21/39212721_309282939650058_4390359451652063232_n.pdf/Mollii-Evidence-sheet.pdf?_nc_cat=0&oh=4833cf90a96e730e2598a62308b9a6a7&oe=5B7AC0AA&dl=1

https://cdn.fbsbx.com/v/t59.2708-21/39353336_289201621661745_853346367479742464_n.pdf/Mollii-Pres-en-anglais-Jorgen-2017.pdf?_nc_cat=0&oh=af24eed60547c861f7de17d923cc2c2e&oe=5B7B3467&dl=1

French:

https://france3-regions.francetvinfo.fr/bourgogne-franche-comte/nievre/innovation-la-combinaison-mollii-permet-aux-handicapes-de-retrouver-de-la-motricite-726659.html

quelques rappels sur Mollii :  https://www.facebook.com/Mollii.France/

Description ici : http://france3-regions.francetvinfo.fr/bourgogne/nievre/innovation-la-combinaison-mollii-permet-aux-handicapes-de-retrouver-de-la-motricite-726659.html

et là : http://www.handibooking.com/mag/combinaison-mollii-permettre-aux-handicapes-de-se-deplacer-a-nouveau/101

et là : http://www.dailymotion.com/video/x2r2ud5

lire aussi : http://apetitpas.over-blog.fr/2015/07/ete-2015.html

Association near Paris :

Mélanie Masson-Jeannot

présidente bénévole d’EHM et maman d’Alice, (IMC de 11 ans).

Association Enfance Handicap Moteur – 3 rue de Paris – 58150 Pouilly-sur-Loire

blog : http://apetitpas.over-blog.fr

https://www.facebook.com/Mollii.France

https://www.facebook.com/EHM-Enfance-Handicap-Moteur-%C3%89ducation-Conductive-1489226281379052/

Tel : 06 87 74 56 54

mmassonjeannot@wanadoo.fr